Growing numbers of people will grow old and die while incarcerated. A team from The Penn State University Ross and Carol Nese College of Nursing and Klein Buendel participated in a panel presentation at the Gerontology Society of America Annual Scientific Meeting on November 12-15 in Boston, MA, to discuss their research on caring for the aged and dying in prison.

The panelist, Dr. Erin Kitt-Lewis from Penn State, presented a pragmatic approach to the usability testing of Just Care. Just Care is a 7-module digital program to train people living in prison to assist staff by providing care to their peers who are older or dying. The web-based program educates prison staff on the needs of chronically ill, aging, and dying people who are incarcerated and provides implementation tools for providing care. Research evidence supports using peer caregivers to assist staff with geriatric and end-of-life care.

The Just Care team learned that gaining access to conduct research with external technology is limited at some correctional facilities as many are reassessing their technology capacity and policies, especially with limited staff. As a result, a pragmatic approach to conducting the research was necessary. In collaboration with the prison administration at one state prison system that had instituted restricted access to technology, an innovative approach — simulated usability testing — to test the program using focus groups was developed.

A total of six focus groups, two with staff and four with people living in prison, were held at one men’s and one women’s prison in a mid-Atlantic State; nine staff and 28 peer caregivers participated. The modified approach involved two on-site researchers conducting the focus groups while projecting the Just Care e-learning on a large screen and interacting with participants. Simultaneously, two off-site researchers connected via videoconference to screen share Just Care and take handwritten field notes. Participants were asked to comment on the content, feasibility, clarity, and ease of use of the program. 

Analysis of the qualitative data collected from the simulated usability testing resulted in three themes: barriers, facilitators, and future directions for the program. Each of these were described by the panelist in some detail.

This research was funded by an STTR grant to Klein Buendel from the National Institute on Aging (AG057239; Dr. Susan Loeb from Penn State and Dr. Barbara Walkosz from Klein Buendel, Multiple Principal Investigators). Additional collaborators include Dr. Erin Kitt-Lewis, Dr. Kalei Crimi, and Nawal Alsearhi from the Ross and Carol Nese College of Nursing at Penn State University; and Amanda Brice and Steve Fullmer from Klein Buendel.